Where does the study take place?

Study visits will take place at the local hospital where you receive your Crohn’s and Colitis care, however lots of the data can be collected at home using online or paper questionnaires.

Do I have to take part?

No, it is up to you to decide whether you want to take part in this study. If you choose not to take part, you will still receive the usual care you would expect to receive from the clinical team at your hospital. By signing a consent form, this means that you fully understand what taking part in the study means for you.

That’s why it is really important that you take as much time as you want to read this information sheet and ask any questions.

Will I get paid to do this study?

As a thank you for taking part, you will receive a £50 high street shopping voucher for completing the first study visit questionnaires. If you have a confirmed diagnosis of Crohn’s or Colitis you will also receive £25 vouchers after completing your study questionnaires at each of the 3, 6, 9, 18 and 24 month visits, as well as an additional £50 voucher on completion of the 12 months study questionnaires.

Up to £60 in travel costs will be reimbursed during study participation. The total value over 2 years is up to £285.

Who can take part?

In order to take part in the study:
● You must be aged 16 or over.
● You must have tests and/or symptoms consistent with suspected Crohn’s or Colitis based on review of your patient record by the research or clinical team.
● You must not have had a Crohn’s or Colitis diagnosis confirmed previously.
● You must not have been treated previously for Crohn’s or Colitis.

Why are we doing the Open-IBD study?